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Epstein-Barr Treatment for Long Covid?
Post-COVID Recovery & COVID-19 | Last Active: Feb 5 4:28am | Replies (103)Comment receiving replies
@milton10 cannot thank you enough for validating what so many of us have been saying and told no tests and nothing can be done. 30 yrs ago the doctor I worked for finally diagnosed my EBV after witnessing countless other healthcare systems failing me for over 10 yrs. Now the same scenario when I say my EBV reactivated with covid and continues over year later with post covid, told thats not possible and nothing can be done ! So again thank you!!!
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law59 I am so very sorry for your experiences battling persistent EBV. I always maintained that after my first bout of mono 30 years ago, I was never the same. I have mild flare ups still. In my case, I wake up with very puffy eyes and facial swelling and think, "Here it comes!" The next few days, I experience significant fatigue. Then the symptoms go away. I realize that others experience persistent EBV in other ways, many more severe. I am a physician, but quickly learned not to talk to doctors about what was going on because they dismissed my complaints. I would also get the comment, "You know, doctors make the worst patients."
It is very difficult to suffer from an illness that is largely undetectable by lab tests. My great sympathies to anyone in this position. I am very grateful to Mayo that we have this forum where we can listen to, learn from, and support one another.