I have not posted in a while, but I too have dilation of bile and pancreatic ducts that showed up on multiple exams. including the MCRP. I recently had an appointment (finally) with a hepatologist, whose intellect I found to be astonishing. She advised that the radiologist cannot diagnose any kind of liver or pancreatic disease and that I would need to have an ECRP, which will be scheduled in San Francisco in the near future. She wants to find out what is blocking the bile duct(s). She further explained to me that my long term opiate use could be the culprit, which I was well aware of. I am still a but mystified however, because after she ordered and I had, many lab tests completed, when I asked her if I needed to be concerned about many of the flags, she referred me back to my PCP for explanations. She also told me that she was not concerned about liver cysts, which was a relief. A biopsy will not be needed either, good. Having said this, I am still frustrated because my clinicians are very evasive when it comes to answering my questions, which are probably too direct. I had more labs which have confirmed a diagnosis of hypogammaglobulinemia. I am also being screened for multiple myeloma, a disease which killed my father. Having said all of this, I have pretty much decided to just keep moving forward, not giving any of these findings a lot of energy because it is wasted thought and energy. If my clinicians are not concerned, then I am not going to continue to fight with them in an effort to get whatever treatment may be available to me. I will simply continue with the testing, continue with my art, which has really taken off, and continue to express kindness to others and give to my community. If there are treatments available and offered, I will follow up. If not, I will move on. I am maintaining a weight of about 95 pounds, still have little appetite and am malnourished because I have no appetite as a result of the bile duct issues. Life is too short to be worrying all the time over something I cannot control.

Best of luck to you. If I can be of any help please do not hesitate to inquire. I will continue to post as I receive new information. This patient portal has pretty much become a lifeline to me and has really had a positive impact on my life, and I thank all of you.