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Tumid Lupus with SLE Symptoms?

Autoimmune Diseases | Last Active: Feb 26 3:30pm | Replies (101)
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@kuma

Hi

Welcome to the club. Did you know there are just over 1.6 million of us and did you know if you took 10 people with Lupus and put them in a room there would be 9 women and 1 man. So I am upfront I am the 1 man. Have to tell you before going any further, I am proud to be part of such a select group.

I am definitely not an expert nor do I have any answers. I have been diagnosed with Systemic Lupus Erythematosus [SLE] for short. In my studies I have learned we don’t know very much. I can say I at the senior age of 77 will die with it NOT FROM IT.

The biggest challenges I’ve experienced is:

Fatigue

Sensitivity in my hands and fingers

A bluish/red discoloration of my hands and fingers

Lower back pain [from merely noticeable to extreme]

I have practiced yoga for over 20 years. I have taken Lupus on as a challenge. At an earlier point in my life (age 8) I was given a set of York Barbells. I spent the better part of the next 12 years lifting weights.

I am no expert but I have some ideas on movement that may help you and all my other Sisters and Brothers in this Elite Unit.

Namaste 🙏🏻

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Replies to "Hi Welcome to the club. Did you know there are just over 1.6 million of us..."
hubert | @kuma | Apr 6, 2023

Here is the latest. The back pain I was experiencing really was my piriformis in my right hip. I go to Virginia Mason Franciscan Health (VMFH) in Seattle. Yesterday morning what I then attributed to Lupus was so painful I could hardly get out of bed. I immediately thought go to the ER. Thankfully my wonderful Sally reminded me the last time she went to the ER for the pain she was experiencing from Pancreatic Cancer, she spent the better part of 4 of the day there and learned nothing. This is not a criticism of the ER but mainly an observation of how slammed our medical system is. So what I did was go to the Urgent Care at the VMFH here in Edmonds. It’s only a couple of miles from my home. While they couldn’t check me in until 9 they have a very nice waiting room. At 9 I checked in and was shortly in the exam room with a young doctor. I explained what I was experiencing. Hmm she said I sounds to me like your piriformis. Voila, so it’s Excedrin 3x a day, heating pad and ice packs and stretching (yoga) poses.

I am going into detail to simply let everyone know there are many ways to deal with the obstacles we encounter daily.

I still have SLE and I am very proud being a member of our Elite club. 🙏🏻

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