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What is the average life expectancy of untreated mac?

MAC & Bronchiectasis | Last Active: Apr 22, 2023 | Replies (52)
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@busybeans

You're right. My NJH doctor has not been happy since the get-go but has continued to work with my despite my non-compliance with the drugs (because they made me too sick to function). I am, however, willing to re-visit the whole situation if need be. I saw my ophthalmologist yesterday to get a baseline on my vision (for the ethambutol). I'm waiting on the hearing folks (rifampin) and Infectious Disease folks to return my calls. I agree, one must be her own advocate, but darn! Sometimes it's just overwhelming...I'm sure lots of folks can relate. I do appreciate your positive support!

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Sue, Volunteer Mentor | @sueinmn | Apr 4, 2023

I would like to remind everyone that there are ways to help keep MAC at bay and continue to live well without endless antibiotics for some of us.

If you are fairly ill already it may be worth it to take a course of the Big 3 to see how you tolerate it. Especially if you have pseudomonas , M abscessus, cavities, serious lung damage, fever or excessive weight loss, this can really knock down the amount of bacteria in your lungs and buy time.

Second, regular airway clearance with saline, plus rest,exercise and a healthy diet are a valid form of treatment.

This is what I have relied on for over 3 years after 18 months of the big 3 reduced but did not eliminate the MAC.

Would anyone consider this option?
Sue

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