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@franciekid

lmd, how are you tolerating the Tagrisso. I just had surgery for Stage 1b, and even though there is no metastases, my oncologist wants to start Tagrisso. Also how are you paying for it? Thank you.

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Replies to "lmd, how are you tolerating the Tagrisso. I just had surgery for Stage 1b, and even..."

I am tolerating Tagrisso with no issues. The first week I had mouth ulcers but they cleared quickly and have had zero side affects since.

Hello Francie,
I was diagnosed last May with lung cancer, small growths in both right and left lungs. Surgery to remove lower left lobe was done in June -biomarker testing showed it to be EGFR. However, lymph nodes clear, no sign of a specific means of spread. I chose 2nd surgery for right lung tumor - it was right alongside my heart. All lymph nodes clear, no sign of spread. That tumor was also determined to be EGFR. My oncologist recommended Tagrisso for 3 years as prevention - I've been on it over four months now and doing well. Astra Zeneca is providing it free thru their AZ&ME program. Simple form - they provided a swift response. At first I received it free even though I had private insurance. Now I am on Medicare, had to reapply, but still had positive results. I am SO grateful! Taking the Tagrisso was a choice my oncologist recommended, however he said about 50% of oncologists wouldn't suggest it as I was technically "cancer-free" after the second surgery. This is a good decision for me. Best of luck to you! You got it early which is great! I'm back to attempting to play pickleball and tap dance!

I read on-line that it costs around $14,000./month if you pay out of pocket. It's a very specific drug ( a "boutique" drug - not for everyone) and therefore very expensive. I received my first month's worth of Tagrisso from AON Labs. I'm have Medicare plus Supplemental insurance, and my co-pay was still around $3500. A representative from AON assisted me in applying to Astra-Zeneca, as they have an assistance program based on your income. Thankfully, I was accepted into the program.

My insurance pays for it. The manufacturer (AstraZeneca) also has a program you can signup for that will assist if necessary. As far as tolerating it, I am doing well. I had mouth ulcers after the first week but healed quickly. Nothing else until this month. My bloodwork showed decreased platelets which is a side effect. Not sure how they are going to address this.