I’m sorry for the delayed response, I’ve been away.
Neuropathy is ruling my life right now, pins and needles, numbness and a tight feeling in my feet are constant. I have tried PT, cryotherapy, acupuncture, gabapentin, Cymbalta (which seemed to be diminishing symptoms but side effects were worrisome) all which I have discontinued because I was not getting relief. I am presently taking lyrica but I see no benefit, I will discuss this with my dr when I see him next week. It limits me physically but I do try to continue living as normal a life as possible. I also have it in my hands.
As far as following up I currently am getting a CT scan every three to four months. My last scan done locally was misread as recurrent disease, I had my scans and reports sent to Mayo and Dr Truty and his team verified it was normal. I have decided to follow up at Mayo, I do not want to risk being misdiagnosed and having to go through unnecessary procedures, as almost was the case in March. I have a wonderful oncologist locally whose team is incredible but the level of expertise at Mayo is unmatched in my opinion. I just returned from a trip to Florida and am traveling to Paris and Italy in May. I never want to limit my life because I have learned it can vanish in an instant! It will be one year May 4th since my Whipple, and I am grateful everyday that I am on this earth to live life and enjoy my children and grandchildren. God Bless