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Anyone have Primary Aldosteronism (Conn syndrome)?

Diabetes & Endocrine System | Last Active: Nov 29, 2023 | Replies (20)
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@linda1970

I have all of your above symptoms except the occasional cramps and muscle twitches.
I have never heard of Conn syndrome before and have had Type 1 diabetes since 1956. I have every other thing wrong with me, so what tests did you have that diagnosed you with Conn?
I am curious.
Do you have Type ! or Type 11 diabetes, and for how long?
Malinda Flower

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Replies to "I have all of your above symptoms except the occasional cramps and muscle twitches. I have..."
florentina99 | @florentina99 | Apr 4, 2023

Hi sorry to hear you are struggling with health issues.
I was diagnosed eventually by a simple blood test called ARR.
Their are lots of conditions required such as stopping BP meds prior to the test,having the test early morning after sitting for a while for accurate results.
A ct scan of the kidney should show any problem with the adrenal gland as it sits on top of the kidney.If it is producing excessive hormones like mine was it might appear enlarged or swollen( but sadly mine was normal sized)A non malignant tumour should show provided it is a reasonable size on the scan.
No I'm not diabetic,however the condition does cause very similar symptoms (thirst,excessive urination and resistance to insulin)I was tested for nephrogenic diabetes insipidus, was neg but I had symptoms.
Hope you get some answers, Conns disease is horrible to have and totally life limiting.
Good Luck with your journey!

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