← Return to Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

Discussion
Comment receiving replies
@njed

@ray666 - On drop foot, mine never left. Without orthotics, I walk like my 2-year-old grandson, knees lift high and foot drops and I even walk like he does...holding furniture. Unable to walk normal because toes will get caught and down, I go. Have not fell forward since Dec 2019 so these things help me with improved walking and balance by 60 - 70% and no foot drop. I live at the beach and have lots of walking opportunities all flat and level. I take many short walks, my wife with me. I do not know of anyone where I live that has PN so this is indeed rare, and our year-round population is low. For me, that is the frustrating part because unless you have peripheral neuropathy, others don't know what this is like. My best explanation is ....ever have your foot fall asleep? Mine doesn't go away. Glad for Mayo Connect, we can share our experiences with many others and having knowledge about this disease without of a cure helps all along the way.

Jump to this post


Replies to "@ray666 - On drop foot, mine never left. Without orthotics, I walk like my 2-year-old grandson,..."

Ed @njed – I should be grateful, then, that my drop foot went away, even if I still have a tinge. Frankly, I'd pay it little mind if it weren't a number of doctors who've asked me to get up and walk about, so they could watch how I walk, who've said to me, "I see you've got a problem with your right foot. Have you ever had drop foot?" I too am a "furniture walker." That's why I'm inclined to turn down invitations to social events in other peoples' homes, especially homes I've never been to. Nights at home, when I have to get up from bed and go to the toilet, I know the path, not by foot-touch but by hand-touch: first the bureau top, then the bedroom doorpost, then the hallway wall, then the bathroom doorpost, finally the bathroom light switch. Your foot falling asleep but staying asleep analogy is painfully accurate! I also have a devil of a time getting friends to truly understand what my neuropathy is like –– to be able to "feel" it, if only in their imagination. Often I use the shipboard analogy to get across what walking feels like to me: like walking a ship's deck in a lightly rolling sea. You say you live near the beach. May I ask where? If I'd not mentioned it before, I'm a longtime New Yorker, with many memories of New Jersey, especially of Northern New Jersey. My first assignment in the service was Sandy Hook, and my first job after discharge was with the Bergen County Record in Hackensack. –Ray (@ray666)