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Chromosome 3p Deletion Syndrome
About Kids & Teens | Last Active: Oct 3, 2023 | Replies (23)Comment receiving replies
Hello, I found your link by accident. We are from Czech Republic. My daughter has a deletion of the short arm of the chromosome3. Today she is 32 years old, she still looks like a bigger child. That's quite an advantage 🙂 I can't believe I found someone with the same disabled child. With love Zuzana
Replies to "Hello, I found your link by accident. We are from Czech Republic. My daughter has a..."
Dear Zuzana, thank you for writing. After Colleen and Ingegerd, you are the first one in the whole wide world to reply to my notes of more than three years ago. I don't know how to add emojis to my note; if I knew how, I would add a smiling face like yours with red hearts all over it. Happy Easter to you and your daughter and all of your family! James
Hello again, Zuzana. I want to let you know that I have told the mother of the teen daughter with Chromosome 3 Deletion Syndrome -- they are my cousins -- about you and your daughter. She said she is eager to communicate with you. She must sign-up with Connect first, of course. When I spoke with her, on Easter Sunday, she said she was hoping to connect with Connect this week. I just wanted to let you know that I haven't forgotten about you, and that my cousin wants to connect with you. Best wishes --Jim
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Welcome @zuzana. I'm tagging @mcconnector whose cousin also has Chromosome 3 Deletion Syndrome so that you can hopefully connect with each other.
As @astaingegerdm mentioned, "A child’s function and needs also change with time." With your daughter being 32 years old now, I'm sure you are very skilled at adapting to her functions and needs. I look forward to getting to know more about you and your daughter and learning about your experiences.