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ANA positive then negative then positive...

Autoimmune Diseases | Last Active: Jul 24, 2023 | Replies (53)

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@comptomama

You are 100% correct about doctors. Lab tests only give you a snapshot of your blood at the time of the blood draw. There is no definitive test for most of the autoimmune diseases so why use bloodwork as the deciding factor. I have been in pain for 11 years now and I pay good money to see the doctor who has no clue and is so condescending. "Everything looks good. See you in 6 months." Are you joking? I have read that once you have a positive ANA you should not retest. Either you are healthy with a positive ANA (meaning asymptomatic) or you have something going on and it should be investigated. I am very angry. I need to take care of myself as you do. But I am so tired of this. Btw- the rheumatologist who I was referred would not even call me for an appointment. I called them and argued back and forth about my referral and decided they would be ni different from any other doctor I have seen. I have not followed up. Why should I give then any more money for not helping. If there are any doctors reading our posts, Do better and encourage your colleagues to also so better. We live with our pain and disabling symptoms everyday and we do not need you to tell us we are healthy. If a doctor said to me, I know there is something going on and I just don't know what it is, I would respect that. But they prefer to say, "oh you're fine. Take these pills and let's take care of your cholesterol." Wait a minute doc, why am I taking gabapentin if I am healthy? Super frustrating. Hugs for you Crystalmm. You deserve better.

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Replies to "You are 100% correct about doctors. Lab tests only give you a snapshot of your blood..."

Can you go to a teaching hospital?

My situation is very much like yours. I have been told by many it sounds like a Connective Tissue disorder... I had a positive ANA last summer and had additional testing done that didn't reveal much. This month I had a neg. ANA????? but a positive HLA-B27.

These are my symptoms;
3 retinal detachments and scarring from surgery
Uveitis
Hypertrophic Scarring
GI issues -Constipation, Barretts Esophagus and Reflux
Moderate to Severe Raynaud's Disease
Fatigue
Muscular aching and soreness
Circular red rashes on legs, arms and torso...come and go.

Seeing a new Rheumatologist next month. Also, Uveitis specialist. I'm sure I forgot some other symptoms...Help!!!!!