← Return to ANA positive then negative then positive...

Discussion

ANA positive then negative then positive...

Autoimmune Diseases | Last Active: Jul 24, 2023 | Replies (53)

Comment receiving replies
@crystalmm

Hello I’m new to this group, and not sure if I’m a little too late to share, but I noticed you’re looking for answers just as I am. I will say having the DNA results that show you’re genetically predisposed to having RA/Lupus/Sjogrens.. etc. does not provide any assistance, solace, nor diagnosis. I had my 23 & me dna tested then used the raw data on Prometheus which uses your genetic data to identify scientifically written genetic studies which for me was at least I thought the answer.. I mean it’s the same dna that has positively reported that my eyes are blue, my blood type is O, I’m a female, I’ll have gallstones (s/p cholecystectomy), etc. However for the doctors.. given their complete ignorance of DNA, they simply said “that’s wonderful, once the disease becomes detectable we’ll know how to treat it”. That simply made everything even more frustrating.. it broke me. While my DNA clearly points to autoimmune, my labs bounce back & forth between something is wrong & wow you’re so healthy. I deal with debilitating illness on & off. I will say I’ve come to a point in my life where I’ve all but given up on an actual diagnosis. I stay positive, mind over matter!! I stay as active as I can, mind my diet, and take my vitamins!! One day I will have an answer, we all will!! It’s just a shame that modern medicine.. doctors simply won’t treat proactively, only reactively, with their highly unreliable lab studies!! When a Dr says even healthy people can have a positive ANA & a high CRP.. so why are you testing anyone then.

Jump to this post


Replies to "Hello I’m new to this group, and not sure if I’m a little too late to..."

You are 100% correct about doctors. Lab tests only give you a snapshot of your blood at the time of the blood draw. There is no definitive test for most of the autoimmune diseases so why use bloodwork as the deciding factor. I have been in pain for 11 years now and I pay good money to see the doctor who has no clue and is so condescending. "Everything looks good. See you in 6 months." Are you joking? I have read that once you have a positive ANA you should not retest. Either you are healthy with a positive ANA (meaning asymptomatic) or you have something going on and it should be investigated. I am very angry. I need to take care of myself as you do. But I am so tired of this. Btw- the rheumatologist who I was referred would not even call me for an appointment. I called them and argued back and forth about my referral and decided they would be ni different from any other doctor I have seen. I have not followed up. Why should I give then any more money for not helping. If there are any doctors reading our posts, Do better and encourage your colleagues to also so better. We live with our pain and disabling symptoms everyday and we do not need you to tell us we are healthy. If a doctor said to me, I know there is something going on and I just don't know what it is, I would respect that. But they prefer to say, "oh you're fine. Take these pills and let's take care of your cholesterol." Wait a minute doc, why am I taking gabapentin if I am healthy? Super frustrating. Hugs for you Crystalmm. You deserve better.