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Ashamed: I think about (and plan for) dying. Do you?
Lung Cancer | Last Active: Apr 7, 2023 | Replies (196)Comment receiving replies
Thank you! Unfortunately my NET is in my breast and all specialists (UNM, Mayo) agree it should be treated as "ordinary" breast cancer. Sadly, this has poor results, and the World Health Organization says there are no protocols, and asks for research on the topic. The tumor is too fast growing for NET specific drugs. I was offered chemo, but declined due to kidney disease,
numerous co-morbidites, and preference. I've had a lumpectomy, but cancer is possibly still in a lymph node according to post op scan (pathology report notes only one other cancerous node). This may all be ordinary, but I'm 8 months in to diagnostics and a bit of treatment, including AI. I was pessimistic on diagnosis, and am now more so. I won't just walk away from doctors as my husband--a truly wonderful guy--wants me to at least listen to medical advice. Currently debating radiation. Each doc seems to go through a similar cycle: this is very rare and aggressive, this is totally ordinary, you need big gun treatment immediately, you need more treatment, etc. So emotionally & spiritually I've taken my attitude into my own hands, proceeding with common sense but little hope of cure. Instead, relying on family, friends, nature, creativity, travel (while I can), live music, reading, prayer, meditation, gardening, and being helpful when I can to give my life energy and meaning. Regards to you and this wonderful chat board.
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Wow @mir123, thanks for sharing that. I know NETs can be anywhere, but usually GI or lung. Haven't heard of breast till now. Sorry to hear you have an aggressive type. I had radiation for my aggressive recurrent breast cancer in my chest wall - 27 treatments. Had surgery first, but a positive margin. Radiation just felt like a minor sunburn for the first 15-20 treatments then the fatigue and skin issues suddenly kicked in. Treatments are quick and painless each day. In and out in 10-15 min. Like getting a scan. That was two years ago, so I don't remember the timeline exactly. The worst was over 2-3 weeks after the radiation was over. Glad I had it. Just really, really be proactive and apply the cream 2-3 times a day as suggested. I used Calendula cream from day one. Praying for your comfort, joy, decisions and miracle cure.
I love all the things you are doing to make the most of each day and life. Happy you have a supportive hubby.