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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Hello Charlotte @charlie807, Welcome to Connect. You are right, it is scary and difficult when you are in pain and nothing seems to help. Unrelenting pain, cold and hot feet along with many other awful symptoms is something that a lot of Connect members in the Neuropathy Support Group can relate to and know what you are feeling. The best thing you can do to help yourself is to learn as much as you can about your condition and what treatments are available that might provide some relief. The following neuropathy sites are really helpful for learning more:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.
It sounds like your neuropathy started following a surgery? Do you mind sharing a little more about your diagnosis?
Replies to "Hello Charlotte @charlie807, Welcome to Connect. You are right, it is scary and difficult when you..."
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In 2010 I had surgery on L5-S1 and right leg was numb after surgery, not before. Pain still there sent me too PT for a few months nothing helped at all. Then I started back to pain clinic for the same relief I had , had prior to surgery and none of the injections helped either. After 2 years my right leg still numb, pain still bad I changed doctors. Day 1 the new doctor in 2013 told me that the screws were on my nerves chewing the nerve up and I needed surgery to repair L5-S1 revive , so in Jan 2014 almost to the day I had my new surgery. I learned from the new doctor that if a patient wakes up with a numb leg after surgery that wasn't numb before they should have done surgery right away to fix. And no I didn't sue, I'm still asking myself why I didn't. I'm still in a great deal of back pain and the foot pain is off the charts. I take pain pills mostly for back. I take Lyrica and cymbalta for feet also pain pills I also get RAN injections and I have a pain stimulate in my back. And still have pain. Since 2010 I've tried a great deal of things acupuncture for feet, shots of vit 12into my feet ouch I tried creams and lotions holistic doctors. I currently see a neurologist that also has the same condition and he is most worried about my feet numbness. Charlotte