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Anyone have Primary Aldosteronism (Conn syndrome)?
Diabetes & Endocrine System | Last Active: Nov 29, 2023 | Replies (20)Comment receiving replies
I have had Conn syndrome for a very long time, undiagnosed until 2 years ago.
It causes high bp, muscle aches, cramps ,twitches ,digestive issues,extreme tiredness and heart palpitations. It can be deadly if untreated and often goes undiagnosed for years, like mine.
I almost died after my Dr dismissed my low potassium as nothing concerning for me to attend the emergency room weeks later in a serious heart rhythm. I needed 2 bags of iv potassium to correct the disorder.I had to change Dr after that.!
Replies to "I have had Conn syndrome for a very long time, undiagnosed until 2 years ago. It..."
Hi @florentina99, I think I was probably more fortunate than most because my Primary Aldosteronism was diagnosed during a Mayo Clinic heart study when I was in my 50s and had high blood pressure being treated with different BP meds. The study was a month or so long where I had to spend a couple of overnights in a local hospital and also had to pick up meals at the hospital to take home with me for a specific diet they wanted me to eat. When they determined I had Primary Aldosteronism, they changed my BP meds to 25 mg hydrochlorothiazide and 25 mg spironolactone which has done a good job of regulating my blood pressure.
Do you have to take medications other than the IVs?
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I have all of your above symptoms except the occasional cramps and muscle twitches.
I have never heard of Conn syndrome before and have had Type 1 diabetes since 1956. I have every other thing wrong with me, so what tests did you have that diagnosed you with Conn?
I am curious.
Do you have Type ! or Type 11 diabetes, and for how long?
Malinda Flower