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@mellee

I am so sorry for what you experienced. I would love answers too. They took me off all prednisone for 3 weeks to run lab tests and get accurate results when I went to the Rheumatologist. It was the worst 3 weeks of my life! Like you, I could barely dress and shower myself. I live alone and I just cried every morning getting ready for work. I could barely get in my jeep. I hate it!!!
Prayers for everyone dealing with this mess!!!

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Replies to "I am so sorry for what you experienced. I would love answers too. They took me..."

It made a huge difference for me to find a caring and non-conservative approach when testing. Initially, they thought it was Lupus, but now redoing tests because 1st Rheumatologist didn't run what he should have. It takes a while for them to get it right but finding the right fit in a DR/Specialist makes all the difference. The primary care doctor didn't believe the amount of pain I was in and referred me to a pain clinic after taking me off Prednisone after he was told it was not Lupus, although still thought it could be PMR. Since then the PMR came back in full force and the new specialist stated it was a big mistake to take me off of it.