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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 8 hours ago | Replies (910)Comment receiving replies
I'm Charlotte @charlie807, I'm a patient with neuropathy without diabetes. Mine was calll didn't check my nerves after surgery. I was in just as much pain after surgery plus my right leg was numb. I have pain in my feet sometimes sometimes my feet are so cold nothing warms them, then sometimes they are so hot I can't warm them. Only at night ! I cannot wear socks they feel as if my feet are on fire. I have one pair that's fine. Shoes I have one pair of shoes I can wear without feeling like my foot will break. I'm losing the feeling in both feet so balance is a big problem. My pain doctors tell me all research is being done for diabetics. This is very hard, very scary and the pain is awful and nothing really helps. Very depressing!
Replies to "I'm Charlotte @charlie807, I'm a patient with neuropathy without diabetes. Mine was calll didn't check my..."
I so relate😓
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Hello Charlotte @charlie807, Welcome to Connect. You are right, it is scary and difficult when you are in pain and nothing seems to help. Unrelenting pain, cold and hot feet along with many other awful symptoms is something that a lot of Connect members in the Neuropathy Support Group can relate to and know what you are feeling. The best thing you can do to help yourself is to learn as much as you can about your condition and what treatments are available that might provide some relief. The following neuropathy sites are really helpful for learning more:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.
It sounds like your neuropathy started following a surgery? Do you mind sharing a little more about your diagnosis?