← Return to Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

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@njed

Ray - Our symptoms are very similar which is alarming. I also have bilateral drop foot caused by ?? Neuro docs suggest it is caused by the numbness. I always have a cane nearby, in vehicles, my office and in homes. I also wear orthotics for the drop foot which increases balance, so I get a double benefit. My daughter recently got me the poles as well, but I've never had good coordination - OK, this pole goes here and what foot do I move with that pole. Got to read up on them so I don't end up in the ER! You've heard the expression walk and chew gum...I say no more! Let's keep what we got, good luck. Ed

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Replies to "Ray - Our symptoms are very similar which is alarming. I also have bilateral drop foot..."

@njed– The more we talk, the more I think our diagnoses are mirror images of each other. I also had drop foot maybe 15 years ago (?), which has never gone completely away. When it was at its worst, I wore a special boot (4-6 weeks?). The residue is still with me. There's a slight dragginess to my right foot. I have orthotics in all my shoes, but I love going about (indoors) barefoot. When I do, however, I'm forever wondering if I'm putting a bad torque on my joints (ankles, knees, hips). Me too: a cane in my car (goes everywhere with –– just in case) and a pair of trekking poles. My partner and I had a cabin in the Rockies; she loved it, I did too; but when my PN came along, we gave up the cabin. There was no way I could manage the rough ground; just the 40-yd. trail from the cabin to the outhouse would have kept me up nights. LOL –@ray666