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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: 3 hours ago | Replies (149)
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@billyfeet

I am in a similar situation.....69 YO....incidental discovery of well differentiated NET on tail of Pancreas....no symptoms....2CM size. On the fence about surgery now......just exploring this disease. I wish you well.

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lastround | @lastround | Apr 4, 2023

I’m 63, no systems at all. NET discovered while getting a hernia repaired in April of 2022.
Mine started in my pancreas and spread to my liver and is inoperable. Stage 4, terminal. All i can do is buy time, so don’t wait to long once it spreads your in trouble.
You should ask your doctor what they recommend assuming they are familiar with treating NET cancer.
If you have to do chemotherapy, do it. NET’s gets in your blood stream and can turn up anywhere. Liver is a prime area because of the rich blood flow. Dr. May want to do chemo before they cut it out.
Good luck

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