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New diagnosis: locally advanced pancreatic cancer

Pancreatic Cancer | Last Active: Aug 17, 2023 | Replies (36)

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@momof3gals

Hi!
Happy to hear you have found your way to Mayo.
I had an open Whipple and my surgery was about 7-8 hours. Dr Truty did not offer me the choice of a laparoscopy. I actually had a very good recuperation in the hospital, up walking the next morning. There were a few bumps in the road during my hospital stay but the team, staff and doctors are incredible. I was in the hospital for 5 days. I stayed a week across the street from St Mary’s while my family helped with all of my needs. What regimen of chemo are you on?
It was difficult when I arrived home because I really had no appetite. I would eat what I could in very small quantities at first. I was fortunate I never had the issues with dumping syndrome or vomiting. I handled food well. Now almost one year out from surgery I am able to eat most everything without consequence. My only residual symptom is severe chemo induced neuropathy. I suggest you do everything in your power to avoid this horrible condition. Unfortunately mine does not seem to want to leave me! I am here if you have any questions along your journey. God Bless

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Replies to "Hi! Happy to hear you have found your way to Mayo. I had an open Whipple..."

Congratulations on your successful Whipple. I have a sense of what neuropathy is, but how does it affect you particularly? Is there anything you can take for it? And what is your protocal going forward as far as check-ups, monitoring, etc
Thank you!

For neuropathy try Boiron Hypericum homeopathic pellets that you dissolve under your tongue. You can order them from Amazon. Kali Phosphoricum is another homeopathic remedy that many people try as well.

I do know someone who cannot feel their toes 5 yrs later after 12 rounds of the 5-FU regimen. Neuropathy is the worst long term side effect of this treatment & it’s a crying shame that they are administering this treatment yet have no way to block the nerves from being damaged in your fingers & toes. 😡