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MAC & Bronchiectasis | Last Active: May 31, 2023 | Replies (88)

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@msk

Did they do the gene testing? I don’t have results yet from my gene test. It takes 2 weeks for results.
M

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Replies to "Did they do the gene testing? I don’t have results yet from my gene test. It..."

I was reading your posting in this thread about the genetic testing for cf you had performed through NJH. First of all, I hope that you received good news once your received the results instead of a diagnosis of cf. I just returned from there and while I was there, much to my surprise at age 67, I also tested positive for CF with chloride reading of 64. They told me it would be two weeks to get the results from the genetic testing. It has been a little over two weeks, and I am becoming restless from not knowing the results. I am hoping you could tell me how long it actually took to get your results back and were they reported on the portal or did you have to wait to get a call from your doc? Secondly, and I know this is personal and please do not feel like you need to answer if wish not to do so, if your test returned positive, how are you doing with the diagnosis? What steps are you taking now you know? Any advice for someone who may just be a few weeks behind you in being diagnosed?