Get a second opinion NOW. Make an appointment with another urologist, AND a nephrologist (kidney specialist). I got second and THIRD opinions and it turned out that my first doctors treatment plan was completely wrong for my condition. Be prepared to start over with tests etc. Also, don’t be afraid to SPEAK UP. Don’t let the “white coat” intimidate you. Take a list of symptoms and questions with you. Take notes and don’t leave until your questions are answered. This is your HEALTH and you need to be strong and get answers. Please keep us up to date on your progress. Those of us on this forum care and want you to be healthy!