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Tortuous colon. Surgery or not?

Digestive Health | Last Active: Oct 13 4:15pm | Replies (25)

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@yintwin

I share your situation, except we haven't tried the medication you mentioned. I've been repeatedly hospitalized because of my colon, diverticulitis, and two years ago a massive volvulus in my transverse colon, which is torturous and profoundly redundant. Last Aug. I had abdominal surgery to explore the outside of my colon for any trace of endometriosis, and he did an appendectomy while he was in there. No endometriosis was found, but the surgeon said he'd never seen a colon as profoundly redundant as mine. Since then I've had no abatement of my symptoms, they continue to worsen. Everything that we've tried has had minimal, temporary success, at best. As problematic as my redundant colon is, I really think removing that bowel is the most reasonable solution. As you have probably experienced, the pain is like childbirth. I'm 60 years old, I know this surgery is coming for me somewhere down the pike, and I think it's better to do it now while I'm relatively young and otherwise in excellent health and physical condition. I hope to read other people's comments on your post, as I need similar feedback.

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Replies to "I share your situation, except we haven't tried the medication you mentioned. I've been repeatedly hospitalized..."

I’m in exact place as you only they haven’t found any medication that really works for any length of time. Motegrity did for a while. Then on Bethanichol, an off label use. Problem is, they have to keep increasing dose, then side effects and diarrhea.
So, I have gotten one surgical opinion. She felt ileostomy only option as I also have slow transit small intestine and pelvic floor dysfunction. I’m getting a second opinion in May.
It’s been 4 years of misery with this and I’ve had enough. I want to travel and be able to make plans to do things. My life is ruled by my colon. I know surgery is HUGE, but I feel terrible most of the time. I want my life back. Have you been tested for motility or pelvic floor dysfunction? May want to before opting for colon removal. Exhaust all options first. Good luck!