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DiscussionTortuous colon. Surgery or not?
Digestive Health | Last Active: Oct 13 4:15pm | Replies (25)Comment receiving replies
Replies to "I share your situation, except we haven't tried the medication you mentioned. I've been repeatedly hospitalized..."
I’m in exact place as you only they haven’t found any medication that really works for any length of time. Motegrity did for a while. Then on Bethanichol, an off label use. Problem is, they have to keep increasing dose, then side effects and diarrhea.
So, I have gotten one surgical opinion. She felt ileostomy only option as I also have slow transit small intestine and pelvic floor dysfunction. I’m getting a second opinion in May.
It’s been 4 years of misery with this and I’ve had enough. I want to travel and be able to make plans to do things. My life is ruled by my colon. I know surgery is HUGE, but I feel terrible most of the time. I want my life back. Have you been tested for motility or pelvic floor dysfunction? May want to before opting for colon removal. Exhaust all options first. Good luck!