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Ashamed: I think about (and plan for) dying. Do you?

Lung Cancer | Last Active: Apr 7, 2023 | Replies (196)

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@soupycampbell

Thank you so much. Yes, last thing I was told s Few days ago when I pushed for answers was depending whether they go other organs I should have months to a year and because I am in such good shape possibly longer. My daughter had to go to Hawaii (with regards to her business) and I’m going with her tomorrow! Haven’t been there for several years now so that will be nice. I live in White Rock , BC which is close to the ocean and usually pretty warm by now but it’s been unseasonably cooler. I will enjoy the heat.
All the best to you and prayers being sent! Keep us informed.
Joan

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Replies to "Thank you so much. Yes, last thing I was told s Few days ago when I..."

I'm glad you are feeling well. Enjoy Hawaii! I'm excited for you. I've never been, but it's on my list. Take care, Lisa

Joan, I love that you are going to Hawaii! One of my favorite places, but it has been a long time. So beautiful! It will bring you peace and, yes, warmth. Even California has been unusually cool this winter. Enjoy!!! Prayers for you, Lori

As for your lung NETS, I still want to be sure you've seen a NETs specialty team. There is a support organization in Los Angeles LACNETS.org with tons of info, links, videos of NETs specialists around the US giving talks about various treatments. NETs is treated very differently than other cancers and the patients tend to survive much longer. There is also a different treatment plan for each patient -- not standard like common lung cancer. It's more operable even in organs. It's a rare cancer with programs only at top cancer facilities. If your decision to stop treatment is just a quality of life issue and not wanting more surgeries or meds then I understand. I expect to make that same decision at some point. But my local oncologists were not familiar with NETs so I to go UCLA (Los Angeles) for NETs treatment and my local oncologist for unrelated breast cancer treatment. They coordinate. Not sure about Canada, but there is a NETs specialty team in Seattle, WA -- a couple hours from you. I hope the LACNETS site will be helpful.

Joan, I think I mixed up your cancer history with someone you replied to so I guess the NETs info doesn't apply to you. Have fun in Hawaii! Lori