In need of treatment, but can it be in Wisconsin

Posted by toddgalbrecht @toddgalbrecht, Mar 31, 2023

I suffer from extreme pain and muscle spasms. I have been hit by a car 3 separate times and have had 28 surgeries which 10 on my back. I have no quality of life and my UW pain clinic has given up on me. They have lied about tests results, lied about no longer having surgeons that perform "first rib resections" told me I am to complicated and can't find easy answers. The worst is they told my wife and I that I would have been better off if I had died from one of my accidents because I wouldn't be suffering now. I can't afford to stay in hotel for the 7 to 10 days of testing. Can any of your Wisconsin locations do the testing? Not looking for miracles, but to reduce my hell so can function again and sleep.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

toddgalbrecht | @toddgalbrecht | Apr 3, 2023

Yes we do define quality of life, but when you have severe muscle spasms that cause you to collapse when going out to dinner, shopping, getting out of chair, changing position in bed and when you are out in the public and it happens they call an ambulance because I'm on the ground screaming in pain want to switch places with me? This is not living and to have a doctor tell my wife and I that I would have been better off if I had died from 1 of my 3 accidents because I wouldn't be suffering now is not exceptable

Colleen Young, Connect Director | @colleenyoung | Apr 3, 2023

Hi all, this is a reminder about the purpose of Mayo Clinic Connect and the Community Guidelines that help keep the Mayo Clinic Connect community safe, supportive, inclusive, and respectful.

Mayo Clinic Connect is a welcoming online community where patients and caregivers should feel safe in sharing their experiences, find support and exchange information with others. Chronic pain is hard and there are times we need to vent. It's not about whose pain is worse.

The first 2 rules in the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/) are really important
1. Be careful about giving out medical advice
– Sharing your own experience is fine, but don't tell other members what they should do.

2. Remain respectful at all times.

We share our experiences. Above all, it's important to remember that we only have words on a page to express ourselves without the benefit of body language and tone of voice. Be kind. Be supportive.

jenatsky | @jenatsky | Apr 10, 2023

If you’re on disability you have Medicare and adding a mental health professional to your treatment might do you a world of good. You are obviously suffering a great deal and getting your emotional state under control will enable you to make better decisions for yourself. Due to your pain your thought process is centered towards the pain and you need to be able to think straight to obtain better healthcare for yourself. I know that mindfulness meditation has helped me tremendously in dealing with my pain. You’ve had pain for almost your entries life and your brain is wired toward that process and that needs to change. If none of the pain meds you’ve been offered and/or given that were not effective then you need to begin to think outside the box. Getting your emotional state under control with meditation can also help bring your BP down too.