Hi. I don't know if I belong in this group yet, but I have a few symptoms and image results and blood work that seems to be perplexing my doctors.... No pain, No jaundice, light bowel movements, nauseabut no vomiting. 20 lb weight loss over months (unusual for me, usually steady weight) 50% loss of appetitie. Constant gastral discomfort but rarely even a little pain. My stools are a little lighter than usual consistently, they float very often, but without greasy film (sorry to be gross)
No diahreah or constipation.
EBV Positive over 2 months IgG and IgM, Liver Enzymes all elevated, but improving but still high GGT High. ALP highest. Ca-19 negative. Billirubins normal. Ferritin high. CMV positive past only. US showed "a little sludge" in January. CT with Contrast showed small gallstones, no sludge in Feb and unremarkable GB. March had HIDA scan, but they couldn't do CCK because Gallbladder couldn't be visualized on HIDA scan, so they wanted to remove my gallbladder. I asked for MRCP before gallbladder removal consideration. Findings:
liver normal. GB contracted. Mild intraphepatic ductal dilation. Common hepatic duct measures 9 mm. THERE IS EVIDENCE OF COMMON BILE DUCT STRICTURE IN THE MIDPORTION EXTENDING FOR 14MM. DISTAL TO THE STRICUTRE THE COMMON BILE DUCT MEASURE 9MM AND THERE IS AGAIN TAPERING AT THE LEVEL OF THE AMPULLA. THE PANCREATIC DUCT IS MILDLY DILATED MEASURING 5 MM. THE PANCREATIC DUCT IN THE REGION OF THE TAIL THE PANCREAS DEMONSTRATED A MILD BEADED APPEARANCE. THE PANCREASE DEMONSTRATED HOMOGENOUS HIGH T1 SIGNAL INTENSITY AND ENHANCES HOMOGENEOUSLY. Another finding that i'm not sure is related is it appears that I have Pancreatic Divisum. Colonscipy 9/22 normal. Upper Endoscopy 12/22 basically normal outside of standard erosions, gastritis, peptic issues, but nothing major. All my tests seem to contradict each other.
HAVE APPT TOMORROW for ERCP/EUS and I am not sure that is the right direction for me. My gastro is
perplexed as is infectious disease Dr. Went for 2nd opinion and that gastro is perplexed. They all agree I should have ERCP. I'm thinking that I should meet with oncologist before ERCP. Any thoughts would be
tremendously appreciated.
If the ERCP is done first, the oncologist will have better information to go on. I would vote for getting the ERCP before seeing the oncologist.