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Call for Mayo Clinic Leadership in Healthcare for Neuropathy
Neuropathy | Last Active: Apr 25 8:19am | Replies (29)Comment receiving replies
Colleen
Grateful !
Based upon Mayo Clinic’s reputation and having Mayo Connect, I was hoping to hear from Mayo and what you shared about the Mayo Clinic.
Beginning of this year I reached out to the Mayo Clinic for help in advocating for and managing my PN – neuropathy at a Mayo Clinic.
While in a Mayo Clinic, Mayo Clinic people could facilitate doctors and the use of medicine, supplements, and nutrition in the treatment of my PN.
Mayo Clinic did not accept my interest – plea – and encouraged me to go to the providers in my area.
Providers in my area don’t function as you described Mayo Clinic does in your response to my post on Mayo Clinic leadership.
Grateful for any help in connecting me with and going to a Mayo Clinic?
Replies to "Colleen Grateful ! Based upon Mayo Clinic’s reputation and having Mayo Connect, I was hoping to..."
@swanson2023, there's the rub with peripheral neuropathy. Currently, treatments are limited. It sounds like you’ve taken the appropriate steps to seek care at Mayo Clinic. Our physician experts have likely reviewed your case with their colleagues. Their review led them to determine that Mayo Clinic cannot offer any further treatment for you at this time. It is Mayo Clinic's goal to provide the best care each patient needs, however they do not want to have you incur additional costs for evaluation or travel if Mayo does not feel it can offer care that is different from what you’re already receiving.
In part, that is why we host this online patient community to offer support and so that Mayo Clinic patients and non-Mayo patients can share what works for them, trials and tribulations, and encouragement of acceptance.
You just reminded me of an older discussion in the Neuropathy support group that I found helpful:
– Acceptance: Anyone have difficulty accepting new limitations daily? https://connect.mayoclinic.org/discussion/acceptance