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@rwinney

Hi there @boonay, I'm Rachel. Sorry to meet you under such distressed times for yourself. I typically hang out in the chronic pain support groups because I have my fair share of it, too. I'm familiar, not so much with auto immunes, but with CRPS and central nervous system disorders. Also, the misery that you are in feeling isolated and defeated, but you are kicking enough to be on Connect, that is a good thing.

Being a nutritionist and personal trainer tells me you have had an education and learned how to help people become healthier and motivated. You probably encouraged them to do better for themselves. If you were to look at yourself as a client or someone you cared about, what would you tell you? What resources can you pull from for help? Sometimes we treat ourselves way crappier than we'd treat someone else.

I'm glad you are out of that apartment. Good riddance! I'm curious who helped moved you in originally? Your posts have been focused on what you don't have in this moment...can you strategize about what you do have and build on that? Getting out complaints, fears and frustrations is great but staying in that space without moving forward wont get you very far. What resources might your insurance provide for mental health? My daughter is on Medicaid so I get the whole poor insurance thing. It can be challenging for sure. Have you found another psychologist since your previous one passed away? Mental health has to be a priority because it effects our physical health and symptoms and snowballs. It sounds like you need support.

Give yourself grace and move forward one step at a time. You got this! Stay focused, stay strong. You've come this far through adversity. That tells me you're a fighter. There is always hope for rehabilitation progress if you believe in yourself, persevere and don't give up. What's one small positive step you can you focus on for yourself and build on? Reaching out here on Connect is a great example of advocating for yourself. What next?

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Replies to "Hi there @boonay, I'm Rachel. Sorry to meet you under such distressed times for yourself. I..."

I am currently in really bad shape crying all the time. I thought the CRPS was bad but with the level that this CIRS has gotten too, just not being able to go out is not the issue but the constant suffering is just unbearable! This sweating, migraines, lack of sleep and the body temperature issues that trigger flareups of my CRPS make it impossible to function at all. Sleep, bathe, wash up, brush my teeth, change my clothes, eat, and care for my dog who is also dying from this mold. I have no support system. Everyone died that mattered to me. Insurance doesn’t cover treatment for CIRS caused by mold exposure. My brain is not functioning as normal and I get very confused so I can’t do this myself as it’s complicated enough but no other doctors who aren’t certified in this will even take a look! No one cares. I’m completely lost and devastated. What is a person supposed to do when they are this sick and can’t care for themselves? Insurance does not cover this. I can’t even get a ride to a doctor from my insurance. I don’t even have the ability to make a commitment to do anything or go anywhere because I am no longer capable. It has gotten probably about as bad as I think it could get. I didn’t know I would continue to get worse and worse more than two years after leaving that nasty apartment! I was sick within 24 hours of moving in there! This is absolutely the worst thing that could ever happen to a human.

I already have the most painful condition known to man over almost my entire body and the mold and CIRS IS SO MUCH WORSE!
The world needs to wake up. People should not legally be able to poison and murder people this way. This makes no sense. You say mold and everyone thinks you’re exaggerating and crazy. I cannot find any real help. I can’t make thousands of dollars appear from thin air to cover the cost of a detox physician and I can’t make myself capable of leaving the house or even caring for myself in the most basic of ways. Where does that leave me? To complain online and still contemplate what the heck I’m going to do at this point. Even five weeks ago it was not even close to this bad and I don’t know what to do. It’s hard enough for me to put a message in here because I’m crying and my phone won’t understand me. In the meantime I’m watching my little dog who is my emotional support pet who had tremors and then seizures from the mold which caused dementia. He’s walking in circles like he always does or he leans his head up against the wall. But that’s if he hasn’t trapped himself against the wall not knowing how do you get out. He has no bowel or bladder control. He’s weak and has trouble walking. I am his emotional support human now and it’s really hard to comfort him and it’s devastating to watch this.

My life was literally perfect before all this. I was one of those annoying positive and happy people by the seriously driven to where my daughter feared that I was so perfect that I would expect the same from her but, of course not. I would be amazed at how perfect my life was then all of a sudden in an instant it all changed. Then I finally had hope with a procedure that I could get my life back and instead I got mold Poisoning!

Because of all of the confusion and my daughter literally thinks I am a crazy person and is completely cut me off from all communication almost as soon as this happened.

This is what the state offers for people who become disabled and have to go into low income housing. They put them in homes which will murder 25% of them and they don’t care. They all know about it! I investigated for more than one straight year, day and night before I got this sick. After that I continued but not constantly as I became more and more sick but went through every level of the government in housing and otherwise all the way up to the governors office. I’m talking state and federal representatives, HUD, department of human rights, the Housing Authority, National Housing Compliance, IDHA, there are so many entities that I spoke to and they are all aware of this and they are all hiding it! They do not care. It is all about the money. They just want to shut me up! I can’t even find a news station who will listen. I thought perhaps that would be a way to get the information out there but no one cares. Especially when it’s during Covid time. They’d rather talk about some guy that found and old camera in the water and found the original owner on social media than a ton of innocent people that are dying because the government poisoned them on purpose.

How does one make sense of any of this?

It was my psychiatrist that passed away and I’ve found one but not in time to refill my medication and no one will refill my medication. This is just so ridiculous. These horrible Medicare/Medicaid doctors make day-to-day a nightmare. Being told to go to the emergency room because you run out of your antidepressants is ridiculous! I just feel like every outside entity wants to fight back in regards to every little thing in my life and it’s just all wearing me down, I know you’ve noticed.