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@nativeoregirl

I’ve been told based on painful shoulder (severe) legs arms and sometimes hands I have Polymylasia Rheumatica also. Very hard to get a diagnosis my Specialist stated as there are no actual tests but like you have all relative symptoms. My Primary Care could wait to pull me off the Prednisone which was for 3 months. We had to wait to see the Specialist Rheumatologist over 5 months. The recent 2nd option specialist said the full course for PMR with Prednisone is a minimum of 18 months. Because of the pain coming back full force after stopping Prednisone she feels I have it for sure. Running more tests to gauge inflammation and rule out other underlying unlikely causes, before I can start back at 15 mg per day! I felt so much better within 3 days, it was amazing. We’ll that’s my experience so far. Please share your symptoms too.
Hang in there!

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Replies to "I’ve been told based on painful shoulder (severe) legs arms and sometimes hands I have Polymylasia..."

Welcome @nativeoregirl, Most PCPs don't have enough experience with PMR and tapering. I was glad that I had a Mayo rheumatologist that told me to listen to my body when tapering and take it very slow. Here's some information that you might want to share with your PCP if you don't have a rheumatologist yet.

--- Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica: https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429