Replies to Sean, any updates? Did you hear back about the study yet? | Mayo Clinic Connect

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High grade 2 and 3 neuroendocrine

Neuroendocrine Tumors (NETs) | Last Active: Apr 15, 2023 | Replies (27)

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@colleenyoung

Sean, any updates? Did you hear back about the study yet?

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Replies to "Sean, any updates? Did you hear back about the study yet?"

ssf | @ssf | Apr 7, 2023

Unfortunately, I was not accepted to the trial study (COMPOSE). In addition to neuroendocrine cancer in my liver I also have a skull base meningioma, the benign mass is not uncommon for those of us with neuroendocrine cancer according to my NET specialist. Looking at PRRT and CAPTEM. In the meantime, I am cramming as much fun as I can into whatever time I have left.