Lupron and Erleada (apalutamide) should I add it?

Posted by sasutah @sasutah, Apr 1, 2023

Should I add the pill (ERLEADA) along with my Lupron shots?

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Erleada is a androgen receptor inhibitor and it is very expensive and is sometimes given after other treatments have slowed down. My reading is that it helps for about 41 months on average This is really a question that you need to discus with your medical team I was on it for 13 months and waiting for a blood test and a pet scan to see the results but I am only 20 months into the 51 month average Good luck to us

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@hbp

Erleada is a androgen receptor inhibitor and it is very expensive and is sometimes given after other treatments have slowed down. My reading is that it helps for about 41 months on average This is really a question that you need to discus with your medical team I was on it for 13 months and waiting for a blood test and a pet scan to see the results but I am only 20 months into the 51 month average Good luck to us

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Thank you hbp, I have advanced stage 4 and have had Lupron and Radiation. But, I am concerned about the side effects of adding the daily pill.

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I was on lupron and Erleada together for 13 months. The side effects were noticeable and manageable and livable. The important issue to me was staying alive for longer with an acceptable standard of living. Luckily, I am still alive and life is still worth it. I truly appreciate my medical team at UCLA and now this old guy does indeed count his blessing!

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@sasutah

Thank you hbp, I have advanced stage 4 and have had Lupron and Radiation. But, I am concerned about the side effects of adding the daily pill.

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I also have stage 4 with local spread. Was on Casadex for 2 months as well as Abiratarone daily and Lupron injection. PSA normal after 2 months. Will do radiation as well. Had no side effects from hormone treatment and now some occassional hot flashes.

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After my PC came back earlier this year I had three treatments of radiation, PLUS began getting Eligard 6 month shots and a month ago I went on Erleada. My Hematologist told me that as of 2018 he began routinely adding the Erleada to the patients who have had a spread of their cancer away from the prostate area (mine showed up on a rib, verterbrae and a tiny spot in a lung) So far the only two side effects from the Eligard (which is in the same class as Lupron) and the Erleada has been that I get tired when walking more than 5 miles at a time and I have had an increase in methane like flatuance!!! He said I will be on it "until it stops working"

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74 Year old with metastasized PC
Hi
I have been diagnosed with PC for two years now and by the time it was found it had gone into my bones and it is being treated with Erleada and hormone injections every tree months. I have back pain 24/7 and I'm on several pain killers. (15 pills per day) I still have the pain and my doctor just ups my prescription. I also sleep 12-15 hours a day. I was wondering:
Will drinking Red bull help with my fatigue?
Will cannabis help with the pain and crappy mood?
I know that this is an off the wall post but I'm desperate.

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@rick42wood

74 Year old with metastasized PC
Hi
I have been diagnosed with PC for two years now and by the time it was found it had gone into my bones and it is being treated with Erleada and hormone injections every tree months. I have back pain 24/7 and I'm on several pain killers. (15 pills per day) I still have the pain and my doctor just ups my prescription. I also sleep 12-15 hours a day. I was wondering:
Will drinking Red bull help with my fatigue?
Will cannabis help with the pain and crappy mood?
I know that this is an off the wall post but I'm desperate.

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Dear Rick42wood,
My name is Nisho and I have been diagnosed with PC with mets to the bone for two years. I am on Eligard injections every three months and Abiraterone Acetate. Before I was diagnosed I had severe pain in my back, shoulder and pubic area. Cannabis helped with the pain then and since. If you go to a dispensary ask the assistant for a strain or gummy or concentrate that works for chronic severe pain. The assistant at the dispensary I went to was very helpful and knowledgeable. Look for reviews of dispensaries in your area. You would be eligible for a medical marijuana card and with it do not need to pay tax, which is 12% here in Arizona. With frequent visits that adds up. With therapies the cannabis has been less necessary. But,, that is changing because the pain in my lower back and shoulder is returning. Fatigue is also a problem for me. I have not found a solution as yet. As far as mood, I can go to the crappy place too. I fortunately have a spouse who calls me on it and friends who do not allow me to say no when they invite me to go out or hang out.

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@nishok

Dear Rick42wood,
My name is Nisho and I have been diagnosed with PC with mets to the bone for two years. I am on Eligard injections every three months and Abiraterone Acetate. Before I was diagnosed I had severe pain in my back, shoulder and pubic area. Cannabis helped with the pain then and since. If you go to a dispensary ask the assistant for a strain or gummy or concentrate that works for chronic severe pain. The assistant at the dispensary I went to was very helpful and knowledgeable. Look for reviews of dispensaries in your area. You would be eligible for a medical marijuana card and with it do not need to pay tax, which is 12% here in Arizona. With frequent visits that adds up. With therapies the cannabis has been less necessary. But,, that is changing because the pain in my lower back and shoulder is returning. Fatigue is also a problem for me. I have not found a solution as yet. As far as mood, I can go to the crappy place too. I fortunately have a spouse who calls me on it and friends who do not allow me to say no when they invite me to go out or hang out.

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I agree with your spouse ! Let’s keep them happy ! Russ gets so angry! I hope his bone metastasis goes away 🙏😊

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