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Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …
Neuropathy | Last Active: Mar 26 9:09am | Replies (126)Comment receiving replies
@jwr - You asked me what I feel is helpful. The short answer is I go to PT and I exercise when I can....even walking. Back in 2015, when I first entered this journey, a neurologist told me to keep moving. Back then, I didn't realize the importance of what he said but that has been the best advise so far. I go to PT for balance exercises 1 - 2 days a week. According to my neuro doc, my PN seems to be holding about 5 -6 inches below knees for past 12 months. I have both small and large fiber neuropathy. I do not experience pain but all numbness and poor balance. My goal is to slow down the progression and retain balance. I know I'm not going to get rid of this but if I can slow it down, for me that is helpful, and I'll do what is necessary to accomplish that. Ed
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Thanks for the reply. I will keep walking, exercising and playing pickleball. I found that when I am distracted with exercise or other activity, the Neuropathy is less noticeable. Good luck to you and stay positive.
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Our experience with our two neuropathies is strikingly alike. I too have so far confined my PN to below the knee, nor do I have pain. I'm also doing every-other-day PT (some stationary cycling, too, to help with knee and leg strength). If there's one thing I'm not doing –– but have promised myself I will begin doing –– is a little outdoor walking. Now that the weather is improving, I've no longer any good excuses. I've got a cane in my Jeeop; my trekking poles too –– so, no excuses! LOL! My goal is to keep what I've got, make small improvements if possible, and hold the progression of my PN in check. If I can do that, I'll be happy. And grateful.
Ray (@ray666)