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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 hour ago | Replies (854)

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@gemmalt

Hi
Not sure if you’ve seen my earlier post but my Dad had a ‘benign’ skin tag removed from his back...13 months later has multiple lung metastasis and now diagnosed as sarcoma (UPS). He is currently undergoing Trabectadin chemo. Please make sure you ask for a CT scan to check your lungs (or PET scan even better). I don’t want to scare you but this is the exact misdiagnosis that my Dad had - told it was a benign atypical fibroxanthoma but it is UPS which comes with a much worse prognosis. They will argue it is very difficult to distinguish between the two but please go for follow up and I wish you all the very best

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Replies to "Hi Not sure if you’ve seen my earlier post but my Dad had a ‘benign’ skin..."

Also for info below -

A lipoma is a non cancerous (benign) lump that forms due to an overgrowth of fat cells. You can get a lipoma anywhere on the body where you have fat cells. Lipomas are not cancer. Cancerous tumours of the fat cells are called liposarcomas.

Thank you for following up with me. I have been on the fence about it. I have been thinking about getting a 2nd opinion.