← Return to Anyone dealing with Carcinoid NETs with Diabetes?

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@dbamos1945

Hi Vinnie694!
We share this issue. I’ve been diabetic for many yrs with pretty good glucose control, but very difficult. Last Spring I received a Dexcom G6 Continuous Glucose Monitor that gives me 24/7 info on my glucose numbers rising, remaining stable or falling. When rising I go for a walk or exercise, when falling I eat (protein with carbs works best) to regulate the glucose numbers to a stable level.
I was diagnosed with Carcinoid Neuroendocrine Tumor last October and began SomatulineDepot injections every 28 days. Immediately I noticed erratic glucose readings and it has been difficult to control ever sense. The CGM has been a lifesaver! This is documented as a side-effect of treatment. My A1c number has risen but trying my best to keep it under 7.0.
I hope this relieves you of any guilt and helps you acknowledge that we can only do our best each day- I consider ourselves lucky to be offered a treatment to hopefully control this ugly Carcinoid disease. Best of life to you…

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Replies to "Hi Vinnie694! We share this issue. I’ve been diabetic for many yrs with pretty good glucose..."

Thank you so much for sharing your experiences. I am hoping someone from the diabetic dept at Mayo will respond this week.. It’s been getting increasingly more difficult to get Dr.s appointments, The nurse practitioner at my primary care office has been treating me, but is not totally sure of how to handle diabetes with NETs.. one day at a time. And the best of life to you..