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In January I was diagnosed with NETs in my stomach. My GI doctor said I had 90 to 100 polyps in the stomach and some are NETs. My GI doctor and oncologists wants me to have my stomach removed but so far I have not approved the surgery. My Endocrinologist wants to start me on Octreotide injections which I hope to begin in a week or so.
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Έχεις συμπτώματα που να ενοχλούν την ποιότητα ζωής σου; εγώ εγχειρίστηκα στο στομάχι και μετά 3 χρόνια που εμφανίστηκε και στο πάγκρεας μου δώσανε μια ένεση Somatuline Autogel 120mg να την κάνω δια βίου μια φορά τον μήνα για να μη μεγαλώσουν οι όγκοι.
Translation:
Do you have symptoms that are disturbing your quality of life? I had surgery on my stomach and 3 years later, when it appeared in my pancreas, they gave me a Somatuline Autogel 120mg injection to take once a month for life to keep the tumors from growing.
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I had 100 tumors in my stomach. Many were polyps, however 5 were biopsied and all were 5 cm and Grade 3 nets with KI-67 of 25 (well-differentiated). I was advised by MDAnderson that I would not survive the gastrectomy. Next endoscope showed all 100 were gone. Some pathologists said that they were infiltrating sub-mucosal area and pancreas and lymph nodes. No treatment, just waiting. All on 2 different tumor boards said that they had never seen any presentation like mine so could offer no help. Caris reviewed my tumors and found no medication to help.Does anyone have any suggestions or ideas?