← Return to Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

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@jemock

Hi Ray, my diagnosis is non length-dependent small fiber neuropathy. Full body plus some organ function is affected. The pain took a few years to fully develop but it’s been ongoing and intense for many years now. I’ve worked constantly with a pain management clinic but they have pretty well exhausted their bag of tricks. The big setback now is that after years of opioids î developed opioid induced hyper alodynia so the opioids were actually causing pain rather than blocking it. So now I’m off of all opioids and the pain is crushing. The best to you. It sounds like you may be dealing with something different. I sure hope so.

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Replies to "Hi Ray, my diagnosis is non length-dependent small fiber neuropathy. Full body plus some organ function..."

Hello, jemock (@jemock)
I suppose it is possible I am dealing with a different sort of neuropathy. I hadn't realized until I'd been diagnosed that "neuropathy" is more or less a catch-all expression for a whole host of neurological ailments. I'm learning that most clearly from the variety of messages here in the Forum. It appears that no matter what particular neuropathic ailment is ours, we're all in search of some measure of relief. I wish you the very best in your search! I hope you and I will have reason to exchange Forum posts again.
Cheers!
Ray (@ray666)