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@ray666

Hello, Rob (@rob39)
I see how you too have been dealing with pain. It seems many others here too have been trying to cope with varying degrees of pain. That may explain the various medications that have been mentioned. Since I have yet to experience pain –– only numbness, and even that my numbness is far from 100% (it took the EMG test to even convince me I had numbness) –– that may be why my neurologist has this far only I advise that I take alpha lipoic acid (R-lipoic acid) and keep up on all of my B vitamins. I too now carry a walking stick around with me (it, or a pair of trekking poles), but I don't rely on it full-time, only if I find myself on 'tricky' ground. Me too: some days –– or some hours of the day –– my legs feel really weak, but other days or hours they feel fine. Puzzling. Nor have I confirmed that my leg weakness is connected to my PN. I attribute some, or maybe all, of the weakness to getting older. I use my stationary bicycle as much as possible trying to recover some leg strength. (Interesting: you're in Australia. The online balance program I have been following for the past several months is sent from Perth.)

Ray (@ray666)

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Replies to "Hello, Rob (@rob39) I see how you too have been dealing with pain. It seems many..."

Hello Ray @ray666.
Sorry for the delay in responding but I have been busy the last couple of days. I feel that as far as my neuropathy goes I will have to just cope as it is. With no cure it all comes down to pain relief. My feet are numb to above the ankles, so some pain is ok. The reality is if that pain goes the problem becomes serious. As far as my spinal problems go, apart from the stenosis I have a syrinx in my spinal cord from T4 to T10 which is causing me more pain and discomfort at the moment. I have placed a post in the spinal section regarding support for Syringomyelia.
Regards rob39.