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DiscussionIdiopathic Polyneuropathy: My endless journey to a near-diagnosis …
Neuropathy | Last Active: Mar 26 9:09am | Replies (126)Comment receiving replies
Replies to "Hello, @jemock I am so sorry to hear what a tough go you have been having..."
Hi Ray, my diagnosis is non length-dependent small fiber neuropathy. Full body plus some organ function is affected. The pain took a few years to fully develop but it’s been ongoing and intense for many years now. I’ve worked constantly with a pain management clinic but they have pretty well exhausted their bag of tricks. The big setback now is that after years of opioids î developed opioid induced hyper alodynia so the opioids were actually causing pain rather than blocking it. So now I’m off of all opioids and the pain is crushing. The best to you. It sounds like you may be dealing with something different. I sure hope so.