← Return to Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

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@ray666

Hello, @jemock
I am so sorry to hear what a tough go you have been having in finding some relief. Was it as bad in the first few years as it is today, or has your pain been getting steadily worse each year? You may not feel like talking about this, and if so, I certainly understand. Although I have been having some difficulties for a number of years, it has only been in the last few years that I have been trying to learn as much as I can about my neuropathy. Takes care. I wish you better days!
Ray (@ray666)

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Replies to "Hello, @jemock I am so sorry to hear what a tough go you have been having..."

Hi Ray, my diagnosis is non length-dependent small fiber neuropathy. Full body plus some organ function is affected. The pain took a few years to fully develop but it’s been ongoing and intense for many years now. I’ve worked constantly with a pain management clinic but they have pretty well exhausted their bag of tricks. The big setback now is that after years of opioids î developed opioid induced hyper alodynia so the opioids were actually causing pain rather than blocking it. So now I’m off of all opioids and the pain is crushing. The best to you. It sounds like you may be dealing with something different. I sure hope so.