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Ways to control hypoglycemia caused by insulinoma in pancreas?

Neuroendocrine Tumors (NETs) | Last Active: Jan 5 6:02am | Replies (42)
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I have been dealing with hypoglycemia since my diagnosis in July.Currently under chemo infusions,I do not qualify for surgery at the moment. Quick fixes are always orange juice,tablespoon of peanut butter or some gingerale. But sometimes in afternoon I have tea with two scoops of corn starch! At night before bed I have two to three scoops of corn starch in tea,although they would prefer in something cold like milk. The I eat a bar called an extend bar(I like the berry and yogurt) not so heavy at night but they have other flavors,you can buy on amaazon. Combination seems to get e thru the night so I can sleep. Morning I take medications with orange juice so I dont have to eat right away...pushes off the need to stuff myself with food!
Hope this helps!

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Replies to "I have been dealing with hypoglycemia since my diagnosis in July.Currently under chemo infusions,I do not..."
pontiac | @pontiac | Apr 3, 2023

Thank you for answering
When I lay completely flat, my blood sugar drops extremely fast. Makes sleeping incredibly hard. Positioning my legs certain ways can make my glucose levels increase 4 or 5 points. Was wondering if anyone else has encountered this

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beth71 | @beth71 | Sep 18, 2023

I can truly empathize as I have been living the same nightmare since last November. I have to consume cornstarch as a bedtime snack to keep my bs up during the night as well. My Selective Arterial Calcium Stimulation Test with Hepatic Venous Sampling showed consistent increases in Insulin in area of pancreas that is perfused by the Splenic Artery, but MD's do not think its increasing trends are not quite high enough for NIPHS or an Insulinoma. They are wanting me to trial Mounjaro to see if I have a dysregulation between glucose intake, storage and release and Insulin production and release. It was also mentioned that we may be just catching the issue earlier in the disease process and said if Mounjaro is ineffective, I may need to repeat the Calcium Stim Test down the road. Anyone else with a similar experience?

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