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Meet others living with Head & Neck Cancer: Introduce yourself

Head & Neck Cancer | Last Active: Apr 14 10:24am | Replies (456)
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@bcu

I had rare angiosarcoma 10 years ago in the skin on my cheek treated with surgical removal and radiation. It has reoccurred adjacent to old site but closer to eye and nose. They could not get clear margin close to my eye. I will have surgery to remove that tissue but no reradiation.( Concern for blindness,no clear margin). I was wondering if anyone has had adjunct therapies anywhere since radiation is off the table. The Sarcoma clinic I go to is not offering it in my situation.

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Replies to "I had rare angiosarcoma 10 years ago in the skin on my cheek treated with surgical..."
William Olsen, Volunteer Mentor | @hrhwilliam | Apr 10, 2023

I was hoping someone who reads this feed would have a similar experience now that we are ten days since you first posted. Some of the larger clinics and hospitals may be to your benefit. Ultimately we all must take our healthcare into our own hands as only we are our best advocate. Do-overs are not in our favour.
The question I have for you, where are you located?

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