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DiscussionAnyone diagnosed with PMR after the Covid vaccine?
Polymyalgia Rheumatica (PMR) | Last Active: Jun 6 1:06pm | Replies (146)Comment receiving replies
Replies to "I had been dealing with excruciating pain beginning of October 2021. Same as a lot of..."
I am so sorry for what you experienced. I would love answers too. They took me off all prednisone for 3 weeks to run lab tests and get accurate results when I went to the Rheumatologist. It was the worst 3 weeks of my life! Like you, I could barely dress and shower myself. I live alone and I just cried every morning getting ready for work. I could barely get in my jeep. I hate it!!!
Prayers for everyone dealing with this mess!!!
https://www.vasculitisfoundation.org/mcm_faq/what-is-steroid-myopathy/
When you mentioned your muscle damage from prednisone, I Googled that. I know the majority of everyone on this “Connect” is on Prednisone. I also was on a short regimen when I was going to be entertaining a lot of guests for several days and then tapered off. I have a wonderful doctor who takes into account all my other conditions (severe osteoporosis and glaucoma). She told me I should probably go to a rheumatologist but warned me he will put me on long term prednisone. They will only address what your condition is that pertains to them and will not really care about your other serious medical conditions and how prednisone can cause irreparable damage. I have learned to live with the pain. Walking every day is crucial. The cbg-thc gummies plus melatonin help me sleep. I am alarmed that others who contribute to this blog are not aware about prednisone can be damaging other vital parts of their body. Pain relief is great. I experienced relief from it when I was on it for 3 weeks, but I am not willing to risk other damage it can cause!
I feel your pain, but not as badly as you've experienced. My onset of PMR was within a week after my second Pfyzer vaccination--from what I've read from others, this seems to be about the norm. Having it flare up on you months later doesn't seem like it might have been the causal event. Take good care of yourself.