We definitely have to advocate for ourselves. You’re lucky that you have places line the Mayo Clinic that specializes in most of the cancers. I find that the surgeons here are good at their job but definitely not at keeping you informed. My call with him was asking for total truth and finding out as much as I can. I told him that it’s like walking around in the dark. Very hard to find the proper answers. Sounds like it’s an aggressive one which it can be especially in the lungs. Since I have another (? Kind ?) it could be spreading like they say it can do. Seen as I’ve had several now, like I said no more tests, biopsies etc. I’ll try and enjoy whatever is left ( he said could be months to 1-2 years) if it doesn’t start spreading too quickly. I will definitely say a prayer for you! Good luck and try and relax.