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Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …
Neuropathy | Last Active: Mar 26, 2024 | Replies (126)Comment receiving replies
Hello ray666, I will explain the rapidly, but first my background with PN. It started about 15 years ago starting in my toes, within 12 years it reached to below my knees. ie. Prickling and itching. It was stable there for the last three years and I could cope without medication although my feet felt numb and nerve pain. In about July last year the nerve pain in my feet started to increase, to the stage that I sought help from my Neurologis, he prescribed neurontin 200mg every 8 hours. This helped with the sharp nerve pain. From the end of August the prickling and itching moved up my legs and by December had reached to the top of my thighs. My knees and legs felt weaker and I was using a walking stick.(cane?) Some days my legs are weak and some days a little better. I refer back to my original reply concerning my spinal problems, I have yet to have it confirmed, but I feel that the leg problem is not connected with the worsening of the PN and it is coincidental that they happened at the same time. Regards rob39
(I live in Australia.)
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Hello, Rob (@rob39)
I see how you too have been dealing with pain. It seems many others here too have been trying to cope with varying degrees of pain. That may explain the various medications that have been mentioned. Since I have yet to experience pain –– only numbness, and even that my numbness is far from 100% (it took the EMG test to even convince me I had numbness) –– that may be why my neurologist has this far only I advise that I take alpha lipoic acid (R-lipoic acid) and keep up on all of my B vitamins. I too now carry a walking stick around with me (it, or a pair of trekking poles), but I don't rely on it full-time, only if I find myself on 'tricky' ground. Me too: some days –– or some hours of the day –– my legs feel really weak, but other days or hours they feel fine. Puzzling. Nor have I confirmed that my leg weakness is connected to my PN. I attribute some, or maybe all, of the weakness to getting older. I use my stationary bicycle as much as possible trying to recover some leg strength. (Interesting: you're in Australia. The online balance program I have been following for the past several months is sent from Perth.)
Ray (@ray666)