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Adenocarcinoma - newly diagnosed

Lung Cancer | Last Active: Jul 17, 2023 | Replies (164)

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@soupycampbell

It seems I now have, they think one of my cancers in the lung is the same thing. I’ve had the PET Scan awhile ago. On March 9 had bronchoscopy’s done on both and didn’t find out much after that. I set up appointment with the surgeon and got called today. Now he says they think the one is (sounded like the same as yours). Sounds like he wants to do more biopsies and I say no. What exactly did they tell you about it? This is crazy when you can’t find out much from the actual specialist.

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Replies to "It seems I now have, they think one of my cancers in the lung is the..."

I have only met with my Onco, Pulmonologist and Surgeon once each. All 3 seem to work together well. I have learned a lot by myself by googling (sometimes too much), but I also have email access to 2 of them. Since I am really new to all of this, it is, at times, very overwhelming and I'm still looking for answers but I do have trust and faith in my cancer team. I understand the reason they need to do a biopsy so they can confirm it is cancer and not an infection. I did have a lung biopsy which confirmed the NSCLC Adenocarcinoma and the bronchoscopy (which did not show anything).
The next procedure called a Mediastinoscopy is to confirm that the mass in my upper R lung has spread to 1 or 2 thoracic lymph nodes which was picked up by the PET scan - this procedure is considered a surgery and it is a day surgery at the hospital under general anesthesia. So I'm a little freaked out about it, but it is my hope to be able to have surgery to remove the mass and lymph node. I have learned a lot from this group but it seems like baby steps when in actuality, I was really just diagnosed in February so it is moving right along. Have faith, stay positive and ask your Oncologist questions. He/she should be the one guiding you. Sometimes we need to be our own advocate and be persistent! Good luck and by all means keep me/us posted!