← Return to Childhood Chronic EBV causing a variety of Adulthood Issues

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@sandyviolet

Omg, that all sounds so overwhelming and scary. So sorry for all of it. Could the new doctor review your mom's medical records in the name of 'family history' in order to give herself some direction of investigation/testing/treatment for you and your sister? None of what you describe is insignificant.

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Replies to "Omg, that all sounds so overwhelming and scary. So sorry for all of it. Could the..."

There are antivirals. Can you call National Institute of Health and ask for help. I think your doctor should try and locate a national expert on chronic activation of EBV. Are there stem cell treatments available? We should be devoting more $$ to fighting this kind of virus instead of waiting for phatmaceutical companies to do it as they don't have financial incentive. There are doctors who have been working on "cures" for herpes viruses, but they need money. I would not keep going from doctor to doctor but ask for your GP to help you locate a national expert or have her correspond with national expert to guide her with your treatment.