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@ray666

Good morning, Ed (@njed)

I have to chuckle when I read how you've left 5 neurologists scratching their heads. I feel I've done much the same thing too. And I too am determined to do all I can to slow down the progression. I'm not happy with how things are now, but if I can manage to keep things "how they are now," I'll call that success. My at-home PT routine appears to be helping (helping = maintaining the status quo), so I'll certainly continue with that. I too would love to know the cause, even if knowing the cause didn't mean I and my doctors were now on the threshold of a cure. I've long since stopped dreaming of a cure.
I recall the afternoon one of my neurologists told me the best label he could attach to my malady was "idiopathic." Although I knew what the word meant, when I got home (because I love the etymology) I looked in my dictionary, and learned that "idio," from the Greek, means "peculiar," and "pathic," also from the Greek, means "suffering." I had to laugh. I thought I might be able to make use of that the next time I'm on a long supermarket checkout line: simply announce, "I should caution you all, I'm the victim of a peculiar suffering. You may want to let me get to the head of the line."

Enjoy the weekend, Ed.
Cheers!
Ray (@ray666)

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Replies to "Good morning, Ed (@njed) I have to chuckle when I read how you've left 5 neurologists..."

Hi, Ray
I went to a neurologist. They did blood test, sonogram on both legs and an EMG. I went back for a follow up. He looked at results and said everything look good. as I was getting ready to leave, he looked at me and said I have no idea what is wrong with your feet. My feet swell but swell really bad when I sit on the bar stool at home or when I'm driving.
Thanks,
Conrad Taylor

I have got really flat feet also and they started turning (right outward) left, who knows?? plus I have neuropathy really bad from knees down. Don't you think you inherited the flat feet? Me playing tennis for years in Tretorn's sure didn't help either!! My question is, who do you have make your orthotics? Ive paid for several expensive ones to be made and none of them have actually worked that well and I kept having them remade; but, have given up on the ones to date.