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Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Neuroendocrine Tumors (NETs) | Last Active: Oct 28, 2023 | Replies (22)
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@mimmy

Hi. I also have NET starting in the lung. It has spread to liver and lymph nodes. I have been on Lanreotide since May of 2022. The first few months I had mild reaction to the shot. I have very few side effects now and what I have is doable. My spots have been steady with no new growth. Some of the spots have shrunk. Good luck.

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Replies to "Hi. I also have NET starting in the lung. It has spread to liver and lymph..."
dak10 | @dak10 | Mar 31, 2023

Thank you so much for sharing your experience. My PET scan showed numerous spots in the right lobes of the lung and in the lung lining, also the tail of the pancreas and spleen. I am scheduled for a CT scan of the abdomen which will be specific to review pancreas/ spleen on 4/25, and will meet with the Dr. on 4/26. My first injection will be on 4/20.
Thank you,
Dak10

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