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@ray666

Good morning, @rob39
Thank you again for yesterday's message. I'm curious: when you say your PN was advancing rapidly, how rapidly was that? I had gone for years (maybe as much as ten years) with only minor balance difficulties. It has only been in the past one or two years that I've had to make some lifestyle changes, and, as I explained the other day to my neurologist, even now I find myself unable to say if my PN has gotten (or is getting) worse; a more accurate report is to say that it appears to have plateaued at a more troublesome level, with an occasional "bad" day. Will my PN eventually slip from that plateau and descend rapidly? That's my most pressing question.
Ray (@ray666)

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Replies to "Good morning, @rob39 Thank you again for yesterday's message. I'm curious: when you say your PN..."

Hello ray666, I will explain the rapidly, but first my background with PN. It started about 15 years ago starting in my toes, within 12 years it reached to below my knees. ie. Prickling and itching. It was stable there for the last three years and I could cope without medication although my feet felt numb and nerve pain. In about July last year the nerve pain in my feet started to increase, to the stage that I sought help from my Neurologis, he prescribed neurontin 200mg every 8 hours. This helped with the sharp nerve pain. From the end of August the prickling and itching moved up my legs and by December had reached to the top of my thighs. My knees and legs felt weaker and I was using a walking stick.(cane?) Some days my legs are weak and some days a little better. I refer back to my original reply concerning my spinal problems, I have yet to have it confirmed, but I feel that the leg problem is not connected with the worsening of the PN and it is coincidental that they happened at the same time. Regards rob39
(I live in Australia.)