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Newly Diagnosed: FIGO 2 Uterine Cancer: What does this mean?

Gynecologic Cancers | Last Active: Jun 2, 2023 | Replies (61)
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@gratefulcat

Hi Oregonrain7 -

Thank you so much for sharing your story with me. This information is very helpful. Were you notified of any long-term side effects when you went through your brachytherapy? Did you have a positive pelvic washing? They are recommending I have 4 treatments which feels so radical, and I am trying to make my decision with as much information as possible. The treatment is all in the numbers, as they say. Currently, I have a 12% chance or recurrence, and with brachytherapy, it's reduced to 3% so I would do the treatment if I felt confident it wouldn't create more complicated issues down the road.

I also have been working with a genetic counselor to find out if I have Lynch since I also have two of the genetic markers. My family members did not provide their genetic information; we only went through my family history. If I am diagnosed with Lynch, I would need to coordinate all future care through a Lynch specialist/coordinator whom we have here at our local hospital.

I wish you the very best in your journey and will keep you in my thoughts.

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Replies to "Hi Oregonrain7 - Thank you so much for sharing your story with me. This information is..."
oregonrain7 | @oregonrain7 | Apr 1, 2023

I was warned of the possibility of damaging my bladder or rectum if not properly prepared before the brachytherapy treatments. They requested that I make sure that my rectum was empty. They should give you instructions for that. They also gave me specific instructions on how full my bladder should be.
On the days of the treatment, they used a CT scan to review the position of both organs. They then placed the applicator with the radioactive material using the CT scanner.
As follow-up, the radiologist recommended using a vaginal moisturizer and a vaginal dilator for six months.

As for the pelvic washing, I was not offered that. I will check with my oncologist on why this was not part of the protocol.
Please keep us up-to-date on how you are doing.
Kathy

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