Unfortunately there is no normal with this awful disease. On the upside he is young, a full recovery is possible but will take time, perhaps years. It affects people differently which is why there is not a clear pathway to full recovery. I am sharing a link to a video presentation that is very informative on where the Dr's have found ways to improve care to make full recovery possible for everyone. I am hopeful this provides you with the knowledge needed to understand what the Dr's are saying when you visit them for progress updates. I would also encourage you to ask the Dr's to prescribe water therapy for your son, I go 2 to 3 days a week and it remove sgravity, which in turn helps me to move more freely. I am also including a link to a Facebook group that is safe and helpful to chat with others who are in the same battle as you.

What ever you do, never give up hope, some days it's all we have and it will never disappoint. Romans 5:5

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