My grandson was diagnosed with CIPD on his 16th birthday. We spent 2 months in the hospital and have now been home for 9 weeks. It's hard to watch a 16 year old athlete now in a wheelchair. He is getting infusions every 3 weeks, steroids daily, therapy weekly. He has gained his weight back and he is getting strength back. He can walk with a walker a little. I don't know if this is normal but if it is this is going to be a very long process to see improvement.